Friday, May 2, 2014

Golf Tournament Benefits Kid With Rare Disease

Posted By on Fri, May 2, 2014 at 5:22 PM

Golfing_Fore_Dalton_Art.jpg

At the age of 6 years old, Dalton Al-Chokhachi was diagnosed with duchenne muscular dystrophy, a life-threatening genetic disorder that gradually weakens muscles. On average, people with the disorder, reach their twenties before succumbing to it.

Memphis-based nonprofit organization, SoGiv, has decided to bring more awareness to the disorder that Dalton's battling and help generate financial support to further medical efforts combating it. One way SoGiv plans to fight duchenne muscular dystrophy is through its upcoming fundraiser, "Golf'n for Dalton."

The 54-hole golf marathon will take place Monday, May 5th at Memphis National Golf Club in Collierville (10135 National Club Drive). The tournament will begin at 7 a.m. Each registered participant will receive a pair of SoGiv shoes inspired by "Dalton Defeating Duchenne," a movement dedicated to bringing more support to Dalton's battle. For every pair of shoes sold, one is given to a child in need in an effort to reduce childhood poverty.

The participating cost is $125 per golfer or $50 for shoes. Proceeds raised from the tournament will be contributed to medical care for Dalton, who is now 9 years old.

Duchenne muscular dystrophy is primarily contracted by infant boys; it impacts one out of every 3,500 boys born in the United States. There are about 20,000 new cases each year. Many of those diagnosed with the disorder become wheelchair-dependent between the ages of 9 and 11 years old.

Dalton's family started a petition in late February that urged the Food and Drug Administration (FDA) to use its "accelerated approval" pathway for approval and access to safe, effective therapies for duchenne muscular dystrophy. They were able to acquire more than 100,000 signatures from the petition.

For more information on "Golf'n for Dalton," click here.

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